*update* going as planned





David, face scarred from GVHD.


Hi Everyone,

David tells me to tell you all that everything is going as planned :)

Ok, but really, it's been a bit of a challenge. The mucositis cleared up and now David's been hit by graft versus host disease. I`m not going to pretend that I really know what this means, and I`m not going to get into the unpleasant details but the best way to describe it is that everything in his body wants out. He lost 4 kg in liquid waste over past few days. They did start him on steriods yesterday with some improvement today, but one day at a time, we can`t speculate what tomorrow`s going to bring.

The bonus in all this is that David was moved to a private room. Better view, better light, more room - quieter. If you used to call him at his old extension number - he won`t be there. New extension at VGH is 60645 - but it's not hooked up yet. Maybe tomorrow? Or whenever the phone guy makes his rounds.

New room has sunset views over Kits and English Bay. I like much better.

Talk to you all soon,

Cindy





View from the 15th Floor.



*update* mucositis continues

Hi folks,

Not much to report - been much of the same for the last week or so. David is still battling severe mucositis - apparently similar to trying to swallow rasor blade shards. He's started to see a small improvement over the last few days and was even able to swallow a bit of jello for lunch yesterday, of course now he's suffering for the effort. He's dropped the morphine level down slightly as well and is starting to spend a bit more time awake during the day and asleep at night. He's still very tired though - not very interactive. Still continuing with blood and platlet tranfusions, as needed, almost daily. Had some unusual liver numbers pop up, but the doctors seem to have things under control - I think they switched a bunch of meds, but it's hard to keep track. Highlight of the week - we had lots of fun watching the first disc of the newest season of Weeds a few nights ago.

More to follow - when there's more to report.

Love, Cindy